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Thread: Looking for some cancer drug info

  1. #1
    Join Date
    Oct 2006
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    Tokyo Japan
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    15,806

    Looking for some cancer drug info

    As many of you are aware, my lovely wife Emiko survived a bout of breast cancer April 2008, she did NOT have Cemo, but radiation therapy, Cemo was not deemed necessary. She has had a continuing drug treatment, monthly shots and daily pills. She was using " Goserelin acetate (Zoladex) but had a lot of very bad side effects, and after a year of use, the doctor finally switched her to a new drug called "Leuprorelin" or "Leuprolide Acetate" as the side effects are supposed to be less severe, but this is not proving to be true, at the moment. We are hoping that the side effect taper off, but they were supposed to do so with the first drug, Goserelin, but did not.

    I know a few families have been through the whole cancer thing here, and I was wondering if there are some resources that could be shared, or some information passed on. The doctor here is just about useless, he did a fine job on the surgery, but his people skills are very lacking, when Emiko complains bitterly of not wanting to get out of bed for days at a stretch, and has bone and joint pain so severe that she cannot get up to go to the bathroom, all the doctor has to say is "buck up, only three more years of treatment......." :

    The fact that it took a year of constant pain to get him to change to a different drug, tells me a lot, the guy is a surgeon, so he is unflappable in his belief that he is right, no amount of talking to him has helped, I've tried. As we are in Japan, on socialized medical, changing doctors is just about impossible, we would have to go the private route (Thankfully that route is still open) but it would cost us thousands of dollars a month, not going to happen.

    I'm turning to the brain trust here, hoping to get some leads on info, or some advice, we have two choices really, continue with the drug treatment for another 3 years, or stop.

    Thanks for listening, I know this is not a fun subject, and if you would like keep your info private, please PM me.

    Cheers!

    Stu
    The pessimist complains about the wind; the optimist expects it to change; the realist adjusts the sails.
    William Arthur Ward

  2. #2
    Join Date
    Jan 2007
    Posts
    31
    Stu..this looks to be a very harsh drug, You may want to read up on it.

    I found this while searching:

    http://www.rallycongress.com/2/1902/

    Not sure what to think of it, but you may want to push for something else.

  3. #3
    Join Date
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    Location
    Constantine, MI
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    7,887
    Wish I could help. Linda is on Valcaid (sp?). No side effects to speak of, but its not for all types of cancer.
    Host of the 2017 Family Woodworking Gathering - Sunken Wood

    “We all die. The goal isn't to live forever; the goal is to create something that will.” - Chuck Palahniuk
    www.wrworkshop.com

  4. #4
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    Quote Originally Posted by Justin Leiwig View Post
    Stu..this looks to be a very harsh drug, You may want to read up on it.

    I found this while searching:

    http://www.rallycongress.com/2/1902/

    Not sure what to think of it, but you may want to push for something else.
    Thank you Justin!
    The pessimist complains about the wind; the optimist expects it to change; the realist adjusts the sails.
    William Arthur Ward

  5. #5
    Join Date
    Oct 2006
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    I found more info here........

    http://curezone.com/forums/fm.asp?i=815582

    I think I need to get Emiko off of this drug
    The pessimist complains about the wind; the optimist expects it to change; the realist adjusts the sails.
    William Arthur Ward

  6. #6
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    Oct 2006
    Location
    Central NY State
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    3,374
    When looking at medical info on the web, it is good to have sources that are government or .edu type sites.

    Here is one source that may provide some more info:
    http://www.cancer.gov/cancertopics/d...prolideacetate

    Hope you find some answers, and that Emiko has a fast and full recovery. I know nothing of Japan's medical system, but if she is being followed by a surgeon, is there any way you could request a consultation with an oncologist? [A non-surgeon who specializes in the medical treatment of cancer.]

    Ken

  7. #7
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    Thanks for the link Ken!

    The problem with the socialized system here is that once a patient gets on a doctor's books, he gets paid for them being on his books each month, so he is not willing to send her to an oncologist, as he would not get the payment, besides, the guy is a surgeon, and thinks he is only half a step below a god

    It is a problem, but it is the system we have here, and we have to work within it.

    Cheers!
    The pessimist complains about the wind; the optimist expects it to change; the realist adjusts the sails.
    William Arthur Ward

  8. #8
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    Stuart, my oldest son Jon 27 had a rare forum of cancer, after it was cut out the 2nd time he also went through radiation. His doctor was the top specialist in the country for this kind. I can ask Jon what medication he was taking. I can get back to you when Jon calls me back.

    Your wife is in my prayers. Scary times for you both. We did allot of praying, Jon has been cancer free for 6 years now. The cancer kept him from his desire of going EOD in the Navy. But he handled it well.

    Also my wife 2 best friends just went through breast cancer and both had double mastectomies one is a nurse and I can also see if she would be willing to correspond with you.
    Last edited by Dave Hawksford; 07-02-2009 at 03:54 PM.

  9. #9
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    Thank you very much Dave
    The pessimist complains about the wind; the optimist expects it to change; the realist adjusts the sails.
    William Arthur Ward

  10. #10
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    Mountain Home, Arkansas
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    Stu, very difficult news to hear about your wife. I know nothing that would be useful. But, the Susan B. Komen organization is all about helping bc patients with support. You might find something there:
    http://ww5.komen.org/
    All the best to your entire family.

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