Bill, I am new on the Family. This may be of some help. Look up Knopp Neurosciences in Pittsburgh. They have a new ALS drug working its way through the regulatory process. I have heard they are getting good results. You might also check with the ALS Society. They have up to date knowledge on drugs in the pipeline. ALS is a nasty disease but there are new therapies being developed. So, do not put away the tools just yet. God Speed, Kyle