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Thread: Our Grandson/heterotaxy syndrome - Goodbye Pierce

  1. #1
    Join Date
    Nov 2006
    Location
    Constantine, MI
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    Our Grandson/heterotaxy syndrome - Goodbye Pierce

    I've been holding off posting about this for some time. However, the situation has changed somewhat recently and I thought I might bring my friends here up to date. Not wanting to step on the toes of any members, I simply ask those of you that are so inclined to keep him, Pierce, in your thoughts over the next few days. Pierce was born 2 months early with a condition called heterotaxy syndrome. Among other things, children born with this condition can have organs that are not formed properly or in the wrong place. Pierce was born without a spleen, a detached colon, and two right atria (the upper chambers of the heart). There is also an artery or two out of place. He has spent the majority of his short (4 months) life in the NICU at Riley Hospital for Children in Indianapolis. In his first two weeks he underwent surgeries to remove 80% of his colon and to place a band around an artery to help control blood flow. Two weeks ago he had a stroke, and although they have been able to get his seizures under control, he has not shown any improvement since then and he has been on a ventilator for the last 10 days. The plan had been to wait till he was a bit healthier and heavier (14 lbs) before performing the open heart surgery needed to correct his heart condition. Right now,because of the plumbing mix ups, his heart must pump twice as much blood to attain the same level of circulation as a healthy child of the same size/age. Unfortunately, that surgery must now take place regardless. They just do not see any improvement for him and waiting will be more risky that proceeding with the surgery. Jan flew out to be with her daughter last week and will remain there (staying at the Ronald McDonald House) till a few days after the surgery. The surgery is scheduled for 12/14. That brings you up to date. I'll post more as news comes in.
    Last edited by Rennie Heuer; 08-08-2012 at 05:09 PM.
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  2. #2
    Join Date
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    Vancouver Island, Courtenay/Comox Valley, British Columbia
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    So sorry to hear of your family's grief. I send good wishes and good vibes...
    AKA Young Grasshopper Woodworker
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  3. #3
    Join Date
    Aug 2007
    Location
    Reno NV
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    So sorry to hear about this Rennie.
    Programmer - An organism that turns coffee into software.
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  4. #4
    Join Date
    Dec 2007
    Location
    Los Angeles, CA
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    After hearing about the enormous health challenges that the little guy is facing, all my problems seem minute. I wish the very best for your grandson and the whole family. Hope he fully recovers quickly.
    Chinese Proverb: Man who eats many prunes gets good run for the money.

  5. #5
    Join Date
    Jul 2009
    Location
    Amherst, New Hampshire
    Posts
    10,604
    So sorry to hear about the little guys troubles. Pierce will be in my families thoughts and prayers throughout your family's ordeal.
    Faith, Hope & Charity

  6. #6
    Join Date
    Dec 2008
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    falcon heights, minnesota
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    our best wishes, and hoping for the best rennie.
    benedictione omnes bene

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    check out my etsy store, buroviejowoodworking

  7. #7
    Join Date
    May 2007
    Location
    Thomasville, GA
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    5,992
    Sorry to hear about Pierce's problems. He and his doctors are in our thoughts and prayers.
    Bill Arnold
    Citizen of Texas residing in Georgia.
    NRA Life Member and Member of Mensa
    My Weather Underground station

  8. #8
    Join Date
    Dec 2006
    Location
    Independence, Kentucky
    Posts
    1,354
    Rennie,Pierce will be in my families thoughts and prayers. It is so hard to hear of children being seriously ill.

  9. #9
    Join Date
    Feb 2007
    Location
    North West Indiana
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    6,098
    Pierce is in the best of hands in my opinion. Our grandson goes there due to his seizures. They do work miracles there. I am so sorry to hear of all the suffering and troubles. If I get the frame on my truck straightened and fixed I will try to get down there and take them out to eat. Am waiting on some parts at this time so am at the mercy of a couple of suppliers. You got it though in the prayer department.
    Jon

    God and family, the rest is icing on the cake. I'm so far behind, I think I'm in first place!

    Host of the 2015 FAMILY WOODWORKING GATHERING

  10. #10
    Join Date
    Feb 2007
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    Catalunya
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    Sorry to hear about that Rennie, our thougths are with Pierce and all his family.
    Best regards,
    Toni

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    I also dream of a shop with north light where my hands can be busy, my soul rest and my mind wander...

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