John Pollman
Member
- Messages
- 1,343
- Location
- Rochester Hills, MI
Today's a hard day.
This morning I took the last dose of my trial drug. I've been on this treatment for almost three years. This drug trial is pretty much the only treatment for my Late Onset Tay Sachs. I have had no negative side effects and I feel that it has helped me. The trial sponsor feels differently and has shut the trial down unexpectedly. In a couple of weeks, I'm headed to NIH in Bethesda, MD for four days to get the final lab work and tests done to wrap up the trial.
This is very hard but I'll get through it. It just feels like a light at the end of the tunnel has been extinguished.
This morning I took the last dose of my trial drug. I've been on this treatment for almost three years. This drug trial is pretty much the only treatment for my Late Onset Tay Sachs. I have had no negative side effects and I feel that it has helped me. The trial sponsor feels differently and has shut the trial down unexpectedly. In a couple of weeks, I'm headed to NIH in Bethesda, MD for four days to get the final lab work and tests done to wrap up the trial.
This is very hard but I'll get through it. It just feels like a light at the end of the tunnel has been extinguished.